ooli@lemmy.world to Technology@lemmy.worldEnglish · 10 months agoAll Those 23andMe Spit Tests Were Part of a Bigger Planwww.bloomberg.comexternal-linkmessage-square98fedilinkarrow-up1457arrow-down124
arrow-up1433arrow-down1external-linkAll Those 23andMe Spit Tests Were Part of a Bigger Planwww.bloomberg.comooli@lemmy.world to Technology@lemmy.worldEnglish · 10 months agomessage-square98fedilink
minus-squareStaccato@lemmy.worldlinkfedilinkEnglisharrow-up5·10 months ago23andme requires you to agree to what they ask, which is far more than what Johns Hopkins did for Henrietta Lacks.
minus-squareMelpomene@kbin.sociallinkfedilinkarrow-up1·10 months agoArguably, the only reason they bother to ask is the negative attention the medical field got from Henrietta Lacks. And they’re still not great at it.
minus-squareStaccato@lemmy.worldlinkfedilinkEnglisharrow-up1·10 months agoInformed consent laws were around well before The Immortal Life of Henrietta Lacks came out. I think there were earlier publicized examples of subject mistreatment (like Tuskegee) that already pushed the field to be better.
23andme requires you to agree to what they ask, which is far more than what Johns Hopkins did for Henrietta Lacks.
Arguably, the only reason they bother to ask is the negative attention the medical field got from Henrietta Lacks. And they’re still not great at it.
Informed consent laws were around well before The Immortal Life of Henrietta Lacks came out. I think there were earlier publicized examples of subject mistreatment (like Tuskegee) that already pushed the field to be better.