• Nowyn@sopuli.xyz
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    1 year ago

    One of mine is also lupus. Thankfully it has mostly spared internal organs but it really likes skin and veins in addition to joints in my case, veins being the biggest problem. I also have EDS so the genetic lottery really didn’t like me. I joke with my friends that someone should tell my body that diseases are not Pokemons.

    • SomeoneElseMod@feddit.ukOPM
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      1 year ago

      EDS here too! Type 3, but it’s pretty severe. PoTS, sjorgens, fibro, hypothyroidism, NAID etc etc. My lupus loves attacking my kidneys, heart and brain as well as joints, skin and hair, but it’s kinder on the outside than in. I don’t want to look ill, but it is a bit cruel to look pretty healthy on the outside but seriously ill on the inside. I wish you more good days than bad!